![]() We want to support and complement other FND organisations and advocates. Ill be tweeting separately about them later this week We are doing this because we think its needed, not for any other reason. This takes you to the ‘recommender’ page so you can save items, then share them by email/airdrop/whatsapp with anyone.Īs ever the site and all content is free. Look for the SAVE icon on the site or app. The new save/recommender button lets patients or health professionals identify the resources that they think may be helpful and share them. They will be upgraded very soon So whats new? This is Phase 1 – mostly a transfer of existing material to a new desktop and mobile site as well as a brand new app that Im especially excited about – you can download it here – iphone, android/ ![]() The alternative language sites are still hosted through there. ![]() If you don’t like change (or the new site), no worries – the old site is still accessible at the following link –. We cant do everything we want to yet but you gave us lots of great advice. Thank you to 434 of you that completed a survey about the site last year (65% people with FND, 24% healthcare professionals). Special thanks to (Twitter handles) and many others who either wrote or contributed to sections. There is a lot of content now on the site that Ive co-written with colleagues. In Oct 2020, Scottish Government Neurological Framework funding enabled me to work with Pooja Jain and her team at CogniHealth to improve it. The old site, was looking REALLY old, and also performed badly on mobile. Its not a treatment for FND in itself, we’ve shown that in a trial –, but I hope it’s a good starting point. Neurosymptoms is used by around 50,000 people a month around the world, and is often recommended by health professionals. We have FND patient organisations and from 2019 the FND society for health professionals. Since then, the FND landscape has changed dramatically. I started in 2009, frustrated that there was literally NO information for my patients with FND on the internet. Dr Biba Stanton, NEurologist, Kings College Hospital, London.Glenn Nielsen, Physiotherapist, St Georges Hospital, London.Dr Christos Ganos, Neurologist, Charite Hospital, Berlin.Dr Tammy Hedderley, Paediatric Neurologist, St Thomas’ Hospital, London.Prof Isobel Heyman, Child and Adolescent Psychiatrist, Great Ormond St, London.Jan Baker, Speech Pathologist, Flinders University, South Australia.Clare Nicholson, Occupational Therapist, National Hospital for Neurology and Neurosurgery, London.Dr Laura McWhirter, Neuropsychiatrist, Royal Infirmary of Edinburgh.Dr Ingrid Hoeritzauer, Neurologist, Royal Infirmary of Edinburgh.Prof Alan Carson, Neuropsychiatrist, Royal Infirmary of Edinburgh. ![]() People that have written material for this website with me include: I am grateful to a large and thriving community of people with FND and health professionals with a passion to improve our understanding and treatment of FND around the world. I do hope that the information in this website is useful to you. I’m sorry but I cannot undertake email correspondence with patients, I do not accept NHS referrals from outside Scotland and do not carry out private work. I tweet about FND am cofounder, with Mark Hallett and Alan Carson, of the international FND society – – which exists to improve health professional knowledge and education about FND
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